I've had it since I was 27.
Stage IV, 6 laparscopic surgeries and a series of drug therapies, including RU486 experimentally. Have you tried Lupron or Zolodex? Generally you're on it for 6 months, but they can "add back" a little premarin and provera to alleviate the hot flashes, etc. you may get from "turning off" all the hormones. With using the add back therapies, you can theoretically stay on the GnRh analog drugs (Zolodex, Lupron) indefinately.
Where do you live? I might be able to point you to a reproductive endocrinologist. Hysterectomy is definately a solution, but it is a permanent solution. A divorced friend with 2 kids had one, then a few years later she remarried and was sorry she went that route at such a young age (around 28). So go that route only after exhausting other treatments.
Stage IV, 6 laparscopic surgeries and a series of drug therapies, including RU486 experimentally. Have you tried Lupron or Zolodex? Generally you're on it for 6 months, but they can "add back" a little premarin and provera to alleviate the hot flashes, etc. you may get from "turning off" all the hormones. With using the add back therapies, you can theoretically stay on the GnRh analog drugs (Zolodex, Lupron) indefinately.
Where do you live? I might be able to point you to a reproductive endocrinologist. Hysterectomy is definately a solution, but it is a permanent solution. A divorced friend with 2 kids had one, then a few years later she remarried and was sorry she went that route at such a young age (around 28). So go that route only after exhausting other treatments.
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